The key features of MODY

  • Being diagnosed with diabetes under the age of 25.
  • Having a parent with diabetes, with diabetes in two or more generations.
  • Not necessarily needing insulin.

MODY is very rare compared with Type 1 and Type 2 diabetes – experts estimate that only 1-2% of people with diabetes (20-40,000 people) in the UK have it. 

But because MODY is so rare, doctors may not be aware of it, so it’s estimated that about 90% of people with it are mistakenly diagnosed with Type 1 or Type 2 diabetes at first.


The most common types of MODY

Important information if you have MODY

Testing for MODY



More Topics

Type 1 Diabetes Alström Syndrome
Type 2 Diabetes Neonatal diabetes
Wolfram Syndrome Preventing complications of Diabetes